I have some brand new exciting dissertation work on private industry research practices, along with a user survey on attitudes about research and data use in new contexts! I also have an ongoing collaboration with the California Department of Justice’s on how to responsibly release data through their open data portal. Stay tuned for more updates as these projects mature!
Biosensed data collection, sharing, and use
Working with labmates in the new BioSENSE lab group, I’ve been exploring privacy issues around the collection, sharing, and use of biosensed data. Biosensed data includes physiological (e.g., heartrate, temperature, electrodermal activity (EDA, proxy for sweat), blood pressure, etc.) and emotional analysis data, which can be collected by attached or remote sensors, or simply through analysis of audio or video content. Given the sensitive nature yet analytical potential of these data, I am particularly interested in their potential to enable new research streams. However, little is known about the personal security implications (especially given the uses of biometric information for authentication) and the predictive analytical power in the near future.
Cybersecurity Information Sharing:
This current project builds upon a recent project looking at public health as a model for cybersecurity information sharing. The study explores the role governments may play in facilitating responsible information sharing to promote public goods through activities like research, prevention, mitigation, and community empowerment. Based on these findings we have recommendations for individual entities and governments on how to share information responsibly through legal, policy, and technical measures.
For years, the phrase “information sharing” has been used in cybersecurity policy discussions without much attention to what is to be shared, and also without reference to sharing mechanisms already in place. We will unpack this overused—but under-defined—term and will seek to bring granularity to the understanding of information sharing initiatives. This project includes an inventory and analysis of information currently exchanged or contemplated under new legislation, the associated efficacy, cost/risk/benefit tradeoffs, and emerging future information sharing needs. The team brings legal, policy, and technical expertise together, along with quantitative and qualitative methodologies to provide ready-to-implement recommendations for policymakers, researchers, and industry stakeholders.
The Value of Respect: Reclaiming the Philosophical and Political Foundations of Informed Consent for the Era of Bit “Things” (with Anna Lauren Hoffmann)
The proliferation of sensors, social networks, and massive data repositories presents an unprecedented opportunity to study human behavior. But this opportunity poses new challenges to the protection of individuals and groups by respecting privacy and autonomy, ensuring data security, and considering unforeseen consequences. Organizations have been left with research ethics frameworks and legacy consent processes that are poorly suited for modern data analyses and extended timescales. By marrying legal and policy analysis of informed consent with careful explication of respect itself, we plan to develop a penetrating discussion of 1) the ideal of respect for persons and 2) how informed consent has, at various point in its development, sought to operationalize this ideal in various contexts. Foregrounding the connection between respect and informed consent—and critically interrogating both—is, we argue, an integral step towards the development of a 21st century research ethic and actionable policy recommendations.
You can find some of our work here!